For M.E. Sufferers – Every Week is M.E. Awareness Week

roddy cowie

By Professor Roddy Cowie

13/5/2015

 

 

Mickel Therapy practitioner trainingThe conditions called ME and CFS are not rare. Data fromME awareness a respected source suggest that they currently affect 160,000 people in the UK. For them, every week is ME awareness week. For most of them, that will go on for years more. From personal experience, it will be a rare week when they do not have to deal with someone saying, or implying, that it is ‘all in the mind’. Very few of the people who say it will know anything about the condition, or about the relationship between mind and body. mind and body

It takes incredibly sophisticated systems to make human thought and action possible. At least two layers are involved. One is the layer whose workings we experience as thought – call it rational awareness. The other layer comes to the fore in moments that we call emotional, but it is always at work: weighing up the balance of threat and opportunity around us; bringing to mind the things that rational awareness might need to know; managing the groundwork of our relationships to other people; setting our bodies up to work at high pitch, or to relax and enjoy a meal, or to sleep; shaping the way we learn; and if need be, spotting danger and ringing alarm bells.

The second layer sits across the mind-body divide that people often take as read (though it is thoroughly at odds with most genuinely scientific thinking). Its work involves reaching, so to speak, up into conscious awareness, and down into guts and glands, heartrates and hormones.

something is wrongPeople who are diagnosed with ME show multiple signs that something is wrong with that layer. Most obviously, it does not settle back into balance as it should. Where a well-adjusted system would set people in a low-energy state for a while, they may be kept there for months or years; the surge that normally prepares people to wake may go on surging, and drive them to a long-lasting state of shock; muscle fibres tense, and stay tense, until they are viciously painful; the sense of threat, or powerlessness to deal with threat, may build up, and refuse to go; and so on.

emotional awarenessNobody knows the full list, or why these things happen. What does seem clear is that some of the best levers we have involve the relationship between rational awareness and emotion. Whatever causes the imbalances, some ways of thinking about emotional issues can help to reset them.

It may be that when we understand the second layer better, we will find more direct ways to deal with the problems. For now, though, it is crucial that we help people to use the levers that we have, and do not condemn them to long drawn out suffering because what they are going through does not fit a pattern that we can easily make sense of – and even more, that we do not make it worse by convincing ourselves that because we do not understand it, they must be making it up.

 

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One Response to For M.E. Sufferers – Every Week is M.E. Awareness Week

  1. Angela Wilson says:

    Thank you Professor Roddy for this excellent blog. Sadly the world at large doesn’t have the first idea what it’s like to be afflicted with this dreadful illness. I should know, I was in that dark place for nineteen long years and I can honestly say I found people’s attitudes and the lack of understanding even harder to cope with than the illness itself. Which is saying something! I am and shall be ever grateful to Mickel Therapy for having delivered me from that truly awful section of my life.

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